About Lincoln
Lincoln, a 4 yr old little boy, was diagnosed with spinal muscular atrophy (SMA) type 1 at just six days old. SMA is a neuromuscular disease, with symptoms similar to ALS, with a typical lifespan of 2 years. Thankfully, due to modern science and being born when he was, Lincoln was able to receive a lifesaving gene therapy that has helped delay the progression of the disease. He has made amazing strides with continued therapy and the addition of a second medication.
In hopes of making Lincoln as independent as possible (whatever that will mean for him), he will need ongoing physical and occupational therapy. He attends weekly therapy at NAPA Center and has been able to participate in a few "intensive" therapy programs. These programs include 3+ hours of therapy per day for 3 consecutive weeks. Research shows that kids are able to gain a year of skills after completing an intensive. While these are amazing services, they come at a great cost. Each sessions costs $8,000. Insurance does cover a portion of the therapy, but there is a cap on therapy visits with total out of pocket cost adding up to $20,000.
Please Hit the Links for Lincoln on August 12, 2024 with all proceeds going directly to his medical fund.
